Lyme disease and Indiana Lyme Connect impact on tick borne illnesses

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About Indiana Lyme Connect

iStock_000013112749_LargeOur History:

The founders of Indiana Lyme Connect, ILC, have experienced the problems of delayed diagnosis and complexities of treatment firsthand as their own families have suffered greatly. Knowing that their experiences were not unique, they worked independently for two years to spread information about Lyme disease in Indiana before combining efforts. In March of 2014, they established ILC which aims to raise public awareness about Lyme disease, support those with it, and prepare healthcare professionals to address it.  Within one year of its conception, ILC became a non-profit organization. ILC is exclusively volunteer based and as of 2016, donations are tax deductible.

Our Mission Statement:

We seek to support individuals with Lyme disease and related tick-borne infections–that is Lyme Borreliosis Complex–to educate the greater Indiana community about this often devastating illness, and to prepare healthcare professionals to combat this public-health crisis.

Our Vision:

ILC desires to support individuals with Lyme disease. Currently, ILC offers support groups and a quarterly newsletter. Two educational/support groups currently meet monthly in Indianapolis and Bloomington. We sponsor speakers covering topics related to living with Lyme disease as well as offer a variety of resources and emotional support for those affected by Lyme. Our organization’s vision is to multiply ILC support groups in different regions of our state.

In addition, ILC plans on expanding Lyme awareness efforts in Indiana. Fall of 2015, we launched this website to connect individuals across our state with information, education, people, and events related to this disease. As funds increase, ILC will also promote additional awareness events including public showings of the documentary Under Our Skin I & II, launch Indiana Lyme Awareness Month, and Indiana’s first Lyme Awareness Walk/Run in 2017. Development/printing/distribution of educational resources will also expand.

A third goal is to build a bridge to the Indiana healthcare community as well as provide education about the realities of Lyme disease in our state. To that end, ILC is exploring ways to engage and equip health care workers in diagnosing and treating this disease. In 2016, ILC sponsored two accredited courses on diagnosing and treating Lyme disease in addition to sending two Indiana healthcare professionals to the International Lyme and Associated Disease Society, ILADS*, training/academic conference. As funds increase, ILC will continue to develop local Lyme educational opportunities, develop and distribute Lyme educational materials, and encourage physicians to attend the ILADS physician’s training conference.

*ILADS is a nonprofit, international, multi-disciplinary medical society, dedicated to the diagnosis and appropriate treatment of Lyme and its associated diseases.

ILC welcomes volunteers, resources, personal stories, event notices, and suggestions. Please see Contact.

Our Values include:

  • Compassion for those suffering with Lyme Borreliosis Complex
  • Advocating for the Lyme community
  • Building bridges to the medical community
  • Respecting those with differing views

 

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